The Network of Tyrosinemia Advocates, also called NOTA Cares, is a global nonprofit dedicated to helping individuals and families impacted by Tyrosinemia, a rare genetic condition. What started as a small Facebook group has grown into a worldwide community providing trusted resources on diagnosis, treatment, and dietary care. Through education, advocacy, and events like the NOTA Experience, the organization builds connections, empowers patients, and promotes early detection. At NOTA Cares, no one has to face Tyrosinemia alone—our mission is to provide guidance, hope, and strength every step of the way.
